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Informational resources on specific diagnoses, communication connections, adaptive products and technology, adaptive recreational activities, education, worship ...

Charitable organization set up to provide direct financial and emotional assistance to families affected by Apert Syndrome. Donations welcomed.

Webring of sites devoted to the prolific author.

Site set up by two Manitoba women whose children were diagnosed and treated for craniosynostosis. Includes information on the conditions, therapies, FAQ, surgery ...

The homepage for Johns Hopkins Medicine. The organization brings together the faculty, physicians, and scientists of the School of Medicine with professionals of ...

Ebsteins Anomaly - together we'll be better

The University of Kansas Medical Center (KUMC), a campus of the University of Kansas, located in Kansas City, Kansas offers educational programs and clinical ...

Cranio Kids provides a support network for families affected by craniosynostosis and strives to raise awareness of the condition.