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Описание: Dystrophic Epidermolysis Bullosa Research Association. A voluntary, non-profit organization dedicated to creating awareness and providing support for families affected by Epidermolysis Bullosa (EB). Includes treatment and care ...

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Debra of America -Dystrophic Epidermolysis Bullosa Research ...

The Dystrophic Epidermolysis Bullosa Research Association of America (debra), the only national non-profit dedicated to funding research and providing services and ...

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EB Info World

Information, mailing list, pictures, and help for new parents.

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NOAH — The National Organization for Albinism and ...

An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences.

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- Welcome to DEBRA - DEBRA

Features organization background, information about the disorder, fundraising and research details, and news.

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EBMRF - Epidermolysis Bullosa Medical Research Foundation

The EBMRF is a volunteer, non-profit Foundation dedicated to helping medical scientists learn more about EB, its causes, the development of successful treatments ...

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DEBRA Canada l Working for a Life Free of Pain

A small group of relatives and friends of EB patients founded DEBRA Canada in 1998. That informal group has evolved into a Board of 10 people who meet monthly to ...

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The Progeria Project Foundation - "It's About Time" - ...

Progeria: A very rare terminal condition. From the Greek meaning "prematurely old". Characterized by an appearance of accelerated aging. This Web Site is ...

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