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HHT Foundation International | Hereditary Hemorrhagic Telangiectasia – Osler-Weber-Rendu
Описание: Hereditary Hemorrhagic Telangiectasia – Osler-Weber-Rendu
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Information, support and advocacy for families affected by Lysosomal Storage diseases, a group of rare genetic diseases.
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UK-based organisation that aims to increase the public/government profile of genetic conditions. The AIS Support Group (UK) is affiliated to GIG.
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Welcome to the home page of the Hereditary Disease Foundation, a non-profit, basic science organization dedicated to the cure of genetic disease. 100% of all ...
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Informs and support those affected, directly or indirectly by a mucopolysaccharide or related disease. Offers information regarding each disease, a discussion ...
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Dana's Angels Research Trust Working To a Cure for Niemann-Pick Type C
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Canadian Gene Cure Foundation: human genetics, human genetics disorders, genetic transmitted diseases, down syndrome, human genetic disorders, human genetics ...
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Provides several factsheets and a newsletter.
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Nonprofit organization whose mission is to advocate for families and patients affected by one of the glycoprotein storage diseases. Includes information ...
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