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ANDY & SOFIA
Описание: The inspiring story of a brave boy born with a primary immune deficiency and his sister Sofia who donated stem cells to save his life. Almost 1,000 days in the hospital, a constant battle against life threatening infeccions ...
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ED organization based in North America offering information/advice to individuals and supporting scientific research. Includes a newsletter, publications, FAQs and ...
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The Ectodermal Dysplasia Society is a charity dedicated to improving the health and wellbeing of people whose lives are affected by Ectodermal Dysplasia (ED).
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3.0 / 5.0, Язык: English
The National Library of Medicine (NLM), on the campus of NIH in Bethesda, Maryland, is the world's largest medical library. It collects materials in all major areas ...
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Progeria: A very rare terminal condition. From the Greek meaning "prematurely old". Characterized by an appearance of accelerated aging. This Web Site is ...
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Authoritative facts about the skin from the New Zealand Dermatological Society.
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4.2 / 5.0, Язык: English
An organization where people with albinism, their families and those that work with them can get information, ask questions and share their experiences.
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3.0 / 5.0, Язык: English
Information about NORD, its programs, special events and the variety of services offered. Includes a rare disease, organization and orphan drug database. Diseases ...
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Understanding the immune system is an important part of the healing process.
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